Conducting Research to Improve the Lives of People Affected by Fragile X

Our Fragile X World is a research community dedicated to gathering practical information about the experiences of individuals with fragile X syndrome and their families. We conduct studies and share findings in order to advance science, improve professional practice, and impact policy.

Our Work

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Learn about our studies, read our reports, and explore key findings.

Our Community

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Stay connected through our blog. Hear from our researchers about studies and events.



Find information for families, health professionals, and researchers.