Young boy with fragile X

Conducting Research to Improve the Lives of People Affected by Fragile X

Our Fragile X World is a research community dedicated to gathering practical information about the experiences of individuals with fragile X syndrome and their families. We conduct studies and share findings in order to advance science, improve professional practice, and impact policy.

More than 1,700 families have participated in our research studies and provided valuable information about how fragile X affects their lives.

Our Work

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Learn about our studies, read our reports, and explore key findings.

Our Community

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Stay connected.
Hear from our families and researchers.

Resources

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Find information for families, health professionals, and researchers.