Contact Us

We would love to hear from you. If you have questions or comments about Our Fragile X World, please contact us:

What if I have a medical question about fragile X syndrome or want to find a parent support group?

Our Fragile X World is funded as a research project; therefore, we are not able to provide advice or treatment information about fragile X syndrome. For questions about fragile X syndrome or to find a parent support group in your state, please contact the National Fragile X Foundation at 1-800-688-8765 or by e-mail at

If you prefer to contact us by mail, our mailing address is:

Our Fragile X World, c/o Melissa Raspa
RTI International
3040 Cornwallis Road
Research Triangle Park, NC 27709