The participation of families like yours helps support our research.
Sign up now and get updates when you can take part in fragile X studies.
Signing up for our registry, or research list, is an easy way to help support our work.
Becoming an Our Fragile X World family lets us know that you will consider joining an upcoming study.
By taking a few moments now to sign up for our registry, you can
Sign up for our registry.
Fill out our enrollment survey to sign up.
We contact you.
From time to time, we will invite you to take part in a study on fragile X.
The choice is yours.
You can decide if you would like to take part in the study or not.
You can sign up for our registry if you or a family member has
fragile X, including the premutation or full mutation of fragile X syndrome (FXS).
You can sign up if
Our registry has contact information for people with fragile X and their families.
We keep information of only those people who have agreed to be on our list by taking our enrollment survey. All of our studies are approved by an ethics board. All of your responses will be private, confidential, and secure. Have more questions about Our Fragile X World? Please contact us.
If you have already signed up for our registry, thank you for your support!
Without your time and help, we would not be able to do this important work.
Check out our current studies that are now open:
Need to update your contact information? If you have a new address, phone number, or email, let us know so we can stay in touch about upcoming studies.