Resources for Practitioners
These organizations and documents provide excellent resources for practitioners to provide quality services to fragile X patients and families.
Note: These links are being provided for your information only. Our Fragile X World is not responsible for the accuracy, legality, or content for these external sites or links. If you have questions about the content on one of these external sites, contact the site administrators.
Consensus Documents on Clinical Practices for Fragile X
These guidelines represent expert consensus from the clinical committee of the Fragile X Clinical & Research Consortium (FXCRC) on how to treat individuals with fragile X and associated conditions. The guidelines are meant to reflect the best current information at any given time but are not evidence based.
Early Childhood Technical Assistance Center
The Early Childhood Technical Assistance Center is funded by the Office of Special Education Programs to improve state early intervention and early childhood special education service systems, increase the implementation of effective practices, and enhance the outcomes of these programs for young children with disabilities and their families.
Genetic and Rare Diseases Information Center
Established by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases (ORD) at the National Institutes of Health, the Genetic and Rare Diseases Information Center gives health care providers and their patients immediate access to experienced information specialists who can supply current and accurate information about more than 6,000 genetic and rare diseases in English and Spanish.