Our Fragile X World

We respect the privacy of all visitors to this website.

Personal Information. We will not collect and retain any personally identifiable information about you (for example, your name, address, phone number, or e-mail address) unless you provide it voluntarily. If you choose to provide this information, we will use it to respond to your inquiries or requests and for that purpose only.

Server Logs. Our web servers log the standard information about website users, including the IP address of the user, web pages visited, and date/time visited. We use this information to analyze our website traffic and to improve our site. We do not track individual users, and we do not link the web log information to any other database for identifying individual users.

Links to Other Websites. This website contains links to other websites. We are not responsible for the privacy practices of these other sites. We encourage our users to read the privacy policies of any website to which they connect through Our Fragile X World.

Policy Changes. If we change this privacy policy, the revised policy will be posted here.

If you have questions about this policy, contact us, and we will respond to inquiries within 7 working days.

Our Fragile X World, c/o Melissa Raspa
RTI International
3040 Cornwallis Road
Research Triangle Park, NC 27709
fragilex@rti.org

Our Fragile X World  is funded as a research project; therefore, we are not able to provide advice or treatment information about fragile X syndrome. For questions about fragile X syndrome or to find a parent support group in your state, please contact the National Fragile X Foundation at 1-800-688-8765 or by e-mail at natlfx@fragilex.org.

The content of this website is solely the responsibility of RTI International and does not necessarily represent the official views of any of our funders or partners.

Photos used on this site include images of real families affected by fragile X. These images are used with written consent from the families and may not be copied, distributed, or displayed without their permission.